Little miss make up
Ehlers Danlos Syndrome (EDS)Welcome back to my blog.
Today I will be talking about elders dalnlos syndrome a.k.a EDS. My reason for this is I have EDS. This condition is very unknown and I want to raise awareness as well as giving my dear followers a bigger insight into my life.
Firstly, what is EDS?
EDS is a collection of heritable connective tissue disorders. EDS affects colleges in the body, which is basically the glue holding us together. Due to this our bodies are like elastic bands, that can stretch beyond the normal limits. This resulting in joint dislocations and subluxations.
collegen is found all over the body. Therefore affecting the whole body structure. The skin, gums,organs, blood vessels tendons, ligaments and much more. Which can results in everyday daily struggles.
There is many forms of EDS, most common form is that of EDS type three hyper mobile type. This is the type I have. I will let you all know how EDS affects me body and how I mange to live life to the fullest.
Everyone person with this condition differs in severities. So even though it isn't a nice condition to have I do feel like even though things aren't perfect there is always someone suffering at a greater cost. So embrace what you have and don't dwell on what you don't.
My days consist of moderate to severe pain daily. I am quiet used to the pain so I go about my day as normal, I do take pain medication when it gets unbearable but I try to hold off on pains Meds as much as possible due to the side affects that all medications have.
Most day I have finger or toe dislocations which don't really bother me as they just pop in and out, they do hurt but not as severe as other dislocations. I also get subluxations frequently, this is where a joint moves out of place but not full dislocated. This is very painful and it can stay like that for hours sometimes which is very uncomfortable . The part I dislike the most is the dislocations specially my kneecaps. The pain is excruciating and it's very hard to get the kneecap back into place. I can put it back in myself now but that's from years of experience. I have a temporary cast I strap on my leg and I will rest it for a week or two. The knee swells quiet badly after a dislocation so I must be extra careful as it is easier to dislocated again with swelling.
I have to rest a lot as have unstable lose joints is very tiring on the body. I tire very easily and often take naps to help.
On bad days or days I'm exhausted I do find it hard to walk and do normal day to day things like showering, cooking or even getting dressed and I often need assistance. My mother is amazing and is always there to help when I need it and I can't thank her enough. I also use crutches or a walking stick to help get to the bathroom or sitting room. My body feels a lot older than it is but to me this is my normal.
Having a invisible disability doesn't define who I am I just learn to adapt as my condition has worsened over time. I don't look at what I can't do but I embrace what I can do. I have to be carful doing everything even walking or stretching or yawning can damage or dislocate a joint.
Hope my followers enjoy this read and it has helped raise some awareness of EDS.
Thank you all so much for reading I will continue to blog about my other conditions and each one and my journey through life.
lots of love,